Resources & Support
Comprehensive directory of professionals, support groups, educational materials, and tools to help you navigate your voice disorder journey.
Healthcare Professionals
Speech-Language Pathologists (SLPs)
SLPs specialize in diagnosing and treating voice disorders through voice therapy, behavioral modifications, and education.
How to Find an SLP:
- • Ask your doctor for a referral
- • Use the ASHA ProFind directory
- • Contact local hospitals or medical centers
- • Check with your insurance provider
ASHA ProFind: find.asha.org
ENT Specialists & Laryngologists
Ear, Nose, and Throat doctors who specialize in voice disorders can provide medical diagnosis and surgical treatments.
When to See an ENT:
- • Persistent voice changes
- • Difficulty swallowing
- • Pain when speaking
- • Need for medical treatment options
American Academy of Otolaryngology: entnet.org
Comprehensive Voice Centers
These centers typically offer multidisciplinary care with ENTs, SLPs, and other specialists working together.
Johns Hopkins Voice Center
Baltimore, MD
Comprehensive voice and swallowing disorders program
NYU Voice Center
New York, NY
Specialized care for professional voice users and complex voice disorders
Mass General Voice Center
Boston, MA
Research and treatment for all types of voice disorders
Note: This is not a comprehensive list. Many excellent voice centers exist nationwide. Ask your healthcare provider for recommendations in your area.
Support Groups
Online Communities
National Spasmodic Dysphonia Association
Support groups, educational webinars, and resources for SD patients and families.
dysphonia.orgVoice Disorder Support Groups (Facebook)
Various Facebook groups provide peer support for different voice conditions.
Search Facebook for groups specific to your condition
Reddit Voice Communities
Online forums where people discuss voice disorders and share experiences.
r/VoiceDisorders, r/SpasmodicDysphonia
Finding Local Support
How to Find Local Groups:
- Contact local hospitals or medical centers
- Ask your speech therapist or ENT
- Check with community centers
- Search online directories like Meetup.com
Starting Your Own Group
If there isn't a local group, consider starting one! We can help connect you with others in your area.
Contact us for guidanceMental Health Support
Living with a voice disorder can impact mental health. It's normal to experience anxiety, depression, or grief related to voice changes. Professional support can be incredibly helpful.
Finding a Therapist
- • Psychology Today directory
- • Your insurance provider
- • Referrals from your medical team
- • Therapists who specialize in chronic illness
Crisis Resources
988 Suicide & Crisis Lifeline
Call or text 988
Crisis Text Line
Text HOME to 741741
SAMHSA Helpline
1-800-662-4357
Self-Care Resources
- • Meditation apps (Headspace, Calm)
- • Mindfulness exercises
- • Support group participation
- • Journaling
- • Gentle exercise
- • Creative outlets
Educational Materials
Recommended Reading
"Free to Speak" by Dorothy Sarnoff
A comprehensive guide to voice and speech confidence
Available at most bookstores and libraries
"The Owner's Manual for the Voice" by Rachael Gates
Practical guide to voice care and maintenance
Especially helpful for voice professionals
Medical Journal Articles
Research studies and clinical findings
• PubMed for medical research
• Journal of Voice
• Laryngoscope
Online Learning
ASHA (American Speech-Language-Hearing Association)
Professional organization with patient resources and information
asha.orgYouTube Educational Channels
Free video content on voice disorders and therapy techniques
Always verify information with your healthcare provider
When to Seek Immediate Care
Seek emergency care immediately if you experience:
- Sudden complete loss of voice with difficulty breathing
- Severe difficulty swallowing or choking
- Signs of stroke affecting speech or swallowing
Call 911 or go to your nearest emergency room